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I recently received one of those “The US Office of Management and Budget requires that we survey you about the quality of your stay while at our hospital. Please fill out the survey and return it to us. There is a space at the end where you can describe any concerns or praise you wish to deliver.”

Here’s what I wrote:


I was hospitalized for 23 days while at Valley, and in that time there were a number of occasions where I felt the strain that is slowly degrading our healthcare system.

My injury was mechanical; I had a hematoma blocking my duodenum and was unable to digest food. I was given an NG tube to remove the bile and stomach acid, and an NJ tube to provide food and water. Aside from that, I was in excellent physical health and am modestly athletic; I ride a bicycle regularly and have a workout routine.

The hydration I was given was “typical for that of a 56 year old man,” but it turns out that the typical 56 year old man is not in excellent physical health and does not work out regularly. My condition was not accurately explained to the nutritionist. As a result, after five days I was severely dehydrated and begged for more water. After a test revealed that I was in hypovolemia, this was resolved, but the miscommunication and neglect of patient’s own wisdom about his body was appalling.

At one point while I was there, the hospital pharmacy ran out of the liquid suspension ibuprofen necessary to manage the pain of having two nasal tubes passing down my throat.

I had a narrow NJ tube that required minimal but constant maintenance in order to continue to function properly. Twice while I was there that tube became blocked because a nurse either did not understand how the tube functioned or was too busy to take care of the tube properly. Because of the lack of liquid suspension ibuprofen, one nurse attempted to crush tablet ibuprofen and put it down the tube, blocking it. In another, the alarm indicating that the food being pushed through the tube, a product named Pivot, had run out. Pivot hardens when not in motion and completely blocked the tube.

On both of these incidents, I had to be sent down to Interventional Radiology and subjected to unnecessary X-rays to have the tube replaced.

Despite these incidents, I managed to maintain a daily routine of being unhooked from the NG tube for an hour or so every day in order to do a minimal set of exercises– a quarter-mile walk, a few push-ups, a few squats, that sort of thing. The equipment being used to manage the NG tube was unfamiliar to some of the nurses, and I was the one who had to show and instruct them on how to unhook it.

All of the nurses I spoke to said they were understaffed; where one was optimally assigned to four patients, each was now overseeing six patients. I am not naming any names in the above incidents because I don’t believe that the nurse was at fault; instead, the overwhelmed and undersupplied system failed to teach, monitor, and advise them, and failed to provide them with the proper support.

I am well-educated and insatiably curious. I was able to manage much of my own healthcare, and got along well with all of my nurses and doctors, and so I survived these incidents without any consequence worse than a significant uptick in pain while I waited for resolution. My concern is for the other patients who do not or cannot understand their predicament and manage their own healthcare.

Hire more nurses, and train them better.

elfs: (Default)

Surviving a long hospital stay


I don't know how most people survive a long hospital stay. I did meet a few other patients, and my primary insight is that they were perfectly happy to stay in bed all day and watch television. That, in fact, sickness gave them permission to do what they always wanted: deliquesce in front of the television set.

I couldn't do that. While I was in the hospital, I wrote a wrapper for the Whisper speech-to-text AI so it could transcribe and correctly annotate (the code was mostly for the latter) the audio from the tiny audio recorder I keep on a keychain; fixed a bug in the kernel config for video-for-Linux on the Surface Pro (and realized this skill made me a useful dinosaur), and a Bash script to do autocomplete for the Mame video game platform. I also kept up a steady stream of blogging, mostly about my hospital experience, but also other things.

I did watch a little TV. I tried to appreciate the new Netflix Lost in Space, but never could. I also watched the Korean SF The Silent Sea, which was better acted although the science was silly. I did turn on the TV now and then to watch even sillier things, but it was never my big attention. I read a little. I was on Twitter way too much.

Anyway, let me advise you on this: if you're going to be in the hospital for more than four or five days, make sure you bring whatever you need to keep your intellect alive: a laptop, Sudoku puzzles, a pen and paper, whatever it takes. Don't let yourself go.

My biggest mistake


My biggest mistake during this hospitalization was assuming that since I couldn't eat, I didn't need to brush my teeth. This was a huge error on my part. The first week, I was too addled to think clearly most of the time (although I did find two-hour blocks here and there where I was clear-headed enough to hack a Linux kernel config!), and the nighttimes were the worst, with pain, anxiety, and uncertainty driving me to ask for drugs to help me sleep.

After six days, I resumed brushing my teeth, but somehow still skipped a day here and there until I was fully clear. It was painful; the tubes going up my nose and down my throat pressed against the palate, the plate of cartilage and bone at the roof of the mouth that separates it from your nasal sinuses, plus the tubes themselves were in the way of my mouth. But I did eventually remember to do it reliably.

Don't be like me. Brush all the time. Plaque doesn't need food to build up; plaque uses your own saliva. The inside face of my lower teeth are now roughened with plaque to the point where I may have to call my dentist for an early cleaning.

So, yeah, if you're gonna be in the hospital for more than four or five days, bring your own toothbrush, toothpaste, shampoo & soap. And brush your damn teeth every day.
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Gaunt

Well, I'm home. After 23 days on a stomach pump plus a feeding tube, which the nurses say was both too much and too long, I am finally free of all life-support equipment. That's not to say I'm in "great" shape, just that I'm no longer requiring mechanical intervention to help me stay alive.

And it was indeed staying alive that was the issue. My upper intestine was obstructed, I couldn't process food at all. I was like that for three days before I was properly diagnosed; the first ER mis-diagnosed my problem as "pancreatitis" and sent me home with the entirely wrong set of medications.

For the last three days, we saw successively more improvement in my condition. My feeding tube, which had already been clogged once by a nurse making a mistake, had clogged again by no nurse being available to reset the feeding tube after it had run out of drip to give me, and by the machine having no water left in it with which to flush the tube. I can't really blame the nurses, though; according to one there is supposed to be one nurse for every four patients on the floor, but instead there is one for every six, because they're short-handed and desperately low on resources. Healthcare staff shortages are everywhere, and they're only going to get worse as our economy contracts and COVID continues to ravage our healthcare workers.

I was also told by my doctors, "Despite all this gear, you're the healthiest patient on my floor." By that he meant that I was still strong, still capable, and still fighting. I was also one of the most intensely active in my own healthcare, and I think that made some of the nurses think it was okay to leave me on my own. Not in this case, though.

So while the larger tube for the stomach pump was out, the smaller tube stayed in, despite being clogged and useless. They were waiting to see if I relapsed, as in the past week I had had a "good" day of 500ml followed by a "bad" day of 1200. But no, the numbers kept going, I kept eating, and soon I was back on real food, even if only fluids: cream of wheat, milk, coffee, cranberry juice, yogurt. That sort of thing.

Thursday morning, my surgeon came in and said he would schedule to have the tube removed. "You just yanked the other one, why not this one?" I asked.

"You didn't like me much when I did it last time."

"It was uncomfortable, but I don't blame you for that. Besides, this is the smaller tube. Let's just yank it now." So he did, and I was right, it was smaller and therefore not nearly as uncomfortable. Besides, I'd already been through removing that one, the feeder tube, twice already, so I knew what to expect. It was over before within seconds.

He said, "We'll see how you do today, and if all goes well, I'll either come by tonight or tomorrow and we'll discharge you."

I can't tell you how much that meant to me. I had a lunch that was mostly yogurt and beef broth, but that was enough to convince him that by 3pm it was time to get my discharge paperwork done.

It took two hours, mostly because there were errors on the medication chart that I needed corrected. I'm not taking any new medications at all; in fact, they want me to stop taking antacids, since my body is processing digestive fluids just as readily as any other liquid. Eventually, though, I was allowed to dress in what I'd arrived: pyjama bottoms, sneakers, and a Henley top (I was into Henleys long before Ryan Reynolds repopularized them!). My backpack was stuffed with my intellectual life supports: laptop, e-reader, phone, game pad, headphones, and all the chargers for all of the above. A surprising number of nurses were on-hand to wish me well, saying they'd miss me but understood if I didn't want to ever come back. One nurse walked me down to the front door (it would be awkward if I slipped, fell and injured myself on the way out, right?) and then I was given a Lyft and driven home.



Lunch: Water, Coffee, Calorie & Protein Bomb

Omaha and I immediately drove back out for supplies: broths, fluids, anything I could digest, plus two medications I take regularly because I'm an Old™. The dietician recommended a old-persons' protein drink, but I went with something called "Serious Mass" protein powder, which I have to drink one scoop of twice a day, with 12oz of milk, 8oz of full-fat plain yogurt, and a cup of fruit, all mixed up in a blender. And even that, twice a day, is still just half the calories, protein and carbs I need to run and heal this body of mine. It's hard to get 2500kCal into you when you can't eat real meat.

And with that, I finally took a shower and shaved. I put my wedding ring back on. I feel human again. I'm still on the liquid diet for two weeks, then I meet with the surgery team again (via telemedicine this time) and we decide how to move forward with solid food. I've contact my GP and asked him for a consult so I can get off short-term disability and get back to work; I'm really worried about where my code has gone in the seven weeks I've been away. I was able to view it in the third week, but it's been four weeks since that, so who knows where it's gone or what they've done with it?

Cognitively, I'm all there, or mostly. I have my regular medicines again, and that seems to be working just fine. I just don't want to get too bored.
elfs: (Default)
“Wow. That is a lot of blood.”

Now, to be honest, this may have been a masturbation-related injury.

I caught COVID-19. I had traveled to Florida and family convinced me to go to Disney. I had all four shots: initial Pfizer, Pfizer first booster, Moderna second booster. I tried to mask reliably, but one still has to eat, and I felt safer outdoors; I shouldn’t have, but I did, so I took it off when outside. There were still too many people, too many crowds.

And so I caught it, probably BA.5 or BA.2.75. I isolated in my hotel room, now in Fort Lauderdale, and got a prescription for Paxlovid, and was doing okay. Not great– every swallow felt like I was gargling broken glass mixed with thumb tacks– but okay. Omaha had gotten another room to isolate away from me, and the hotel was being more than accomodating. The morning desk person was terrible, tried to kick me out even though Omaha had negotiated with the manager for the extension; but after calling the manager not only did we get the extension, but they left us plastic bags of their complimentary Continental breakfast (oranges and four cups of yogurt) at our door. So everything seemed under control.

But I was bored. And you know, when a healthy man is bored, and there’s nothing on TV, he, er, takes to stroking his, er, boredom away. So I did. And I hadn’t gotten anywhere yet when I felt this sharp pain in my gut. So, I stopped. Awhile later (like, a whole movie later– Free Guy, great film, I want to watch it again as I missed the first 45 minutes or so), I realized I hadn’t had much food or water that day, and the disease makes you sweat like Alex Jones facing judgment, so I got up and filled my one-liter bottle from the tap. I drank about a quarter of it, still didn’t feel great, got into the shower since showers are my go-to source of warmth, isolation, and white noise comfort. I realized that wasn’t making me feel any better, so I turned off the shower.

You know those 80s video games, the arcade ones where the display’s memory is just part of all the memory on the motherboard? When the game boots up, it needs that memory for other things, so the screen is scrambly and weird until it hooks into position zero of the game’s program counter and behaves correctly. I was suddenly kinda like that.

My mind was a very dark grey, almost black, the threads of thought random and colored dark red. The narrative that is Elf started to cohere, the threads grew thicker and bundled together, and I opened my eyes. I don’t remember questioning why I was on the floor. But it was wet and cold, and I moved to turn over and my hand splashed in… red.

Blood?


“Wow. That is a lot of blood.”

I stood up– pulled myself up, using the countertop, really– looked at myself in the bathroom mirror. I knew where I was and who I was, but that guy in the mirror had the widest staring eyes I’ve ever had. There was blood in my hair and all down the right side of my face. There was blood on my chest. I was naked, wet, and cold. “Wow,” I said. “That is a lot of blood.” I looked under the counter and, yeah, there was a lot of blood, a puddle at least 30cm in diameter, ringed in water from my wet body. Naked and bloody, I stumbled into the bedroom, found the phone, realized I couldn’t read the instructions, stumbled to the bed, found my glasses, got back to the phone. “Hi, uh, I just woke up in a pool of my own blood. Could you call me an ambulance?”

“Oh! Uh, yeah, sure. Room 511, right?”

“Yeah.” I hung up, then found my cell phone and called Omaha. “Honey? I just asked the front desk to call me an ambulance. I just woke up in a pool of my own blood.”

“I’m coming over there!”

She did. She found me on the bed. She answered the phone, and took advice from the paramedic on the way about how to stop my nose from bleeding so much. The paramedics arrived and began asking me questions, which I answered competently. I knew my name, date of birth, address of record, and so forth. I could still quote Shakespeare. (It’s Marvel canon that whenever Tony Stark suffers from a concussion, he recites the ending of Hamlet, Act 2, Scene 2, that whole “For the Devil hath power to assume pleasing shape…” speech, to make sure his brain is still in working order.) Sheriffs arrived and determined it was not a crime scene. The paramedic asked, “Do you want to go to the hospital?”

“Hell, yes.”

“Let’s go.”

A reconstruction of the incident now includes one relevant detail: I was on that floor, unconscious, for an hour and eleven minutes. That’s what the Fitbit says; I was still and unmoving from 5:39pm until 6:50pm. I count myself lucky to be alive, to have come to at all.



One hour, 11 minutes

While we were at the hospital, I was seen by another sheriff who wanted to check the story. When I got to the point about not masking when outdoors at Disney, he snorted and said, “You gotta live your life.” My life is sexy, academic, athletic, and somewhat internal. I live a lot in my own head. Disney was a high risk, and I shouldn’t have done it. There’s not even a viable Truvada for COVID.

At the hospital there were no trauma rooms, so I was left on a gurney in a hallway. I complained about neck pain and was immediately put into a neck brace. Annoying. I met my admitting nurse, who was relentlessly cheerful, Jamaican, adorably hot, and competent as hell. She sent me to a CAT scan, where…

We discovered that I had hemorrhaging and blood in my peritoneal cavity, but my temperature was stable so there wasn’t peritonitis or sepsis. That pain I had felt was COVID shattering blood vessels in my abdomen. Not only was there a lot of my blood loose on the hotel bathroom floor, there was a lot of blood loose and sloshing around in the space around my intestines. I was immediately admitted and a battery of tests were conducted.

The good news, such as it was, is that my hemoglobin levels stabilized almost immediately; my body had recognized the damage and clotted quickly, starting the healing process.

I probed: A cut on my scalp, but very small. The left nostril had been bleeding freely, the right less so. The most damage was a laceration on the inside of my lip, a deep and wide self-inflicted bite wound when I fell. A doctor showed up and gave me very painful injections of lidocaine in the lip, followed by three stitches that he said “Have to be looser than normal so the wound drains properly. The mouth has the most germs of any place, even your backside.” Somehow (“Somehow?” C’mon, Elf) I knew that already. But he was both kind and hella competent, and sewed me right up. As he did, someone in the ER started playing “When the Saints Go Marching In” on a harmonica and… it was kinda nice, actually?

The ER Trauma surgeon, one of those tall, thin, early 30-somethings that

I am more than okay with born psychopaths being surgeons. They get to be well-paid, lauded as heroes, love the challenges, and have no hesitation to cut into people to show off those hard-earned skills.

radiates with health and competence, listened to my story, shook his head with a little smile, said “Fucking COVID” as if it had brought him fascinating new problems, and then gave that little laugh only born psychopaths are capable of. I’ve known a few. This guy was totally in the mold.



Battered, bruised, bleeding internally, happy to be alive.

Somewhere in there, Omaha arrived at the hospital, I took photos of my wrecked face, and we waited for the admissions process to move forward. She liked the nurse as much as I did.

I was put into an ER room, and Omaha went back to her hotel, utterly freaked out, as emotionally wrecked as I was. Eventually I was moved to a standard hospital bedroom, where I had a roommate and a very loud (65dB according to the sketchy sound meter on my phone) Corsi-Rosenthall box. And it was friggin’ cold, but viral infections always wreck my ability to manage my internal temperature. He also kept the TV on all night long, and he stims; I can’t see him through the curtain separating our spaces, but he claps, he slaps himself, he whoops, he randomly outbursts in laughter or just random words, like a light case of Tourette’s syndrome.

And I was here for just “observation.” They would take my blood every 12 hours to make sure the hemoglobin levels stayed the same.

And I settled in for boredom. My beloved Omaha brought me my bag the next day with my books, my laptop, my chargers, my headphones, and my earlplugs! I was equipped for a long intellectual dry spell. Blood was drawn, meals were delivered.

Early on, there was some discussion as to whether or not the damage to my insides was caused by the fall or by COVID directly. The new trauma doctor, a no-nonsense woman of the highly competent stripe, told me that the trauma team had concluded it was a COVID complication. Again, research skills, ADHD and an internet connection, and I found a case study that matches mine: Unexpected tendency to bleeding in COVID-19 patients: A case of spontaneous retroperitoneal hematoma. Healthy woman, no comorbidities, no suspect medications, 47 years old. I had tenderness in the left anterior abdomen, hers was in her back. I caught mine earlier than she did, so I did not need a transfusion. It took three months for her body to clear all that blood out of her peritoneal cavity.

More to come…

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Elf Sternberg

June 2025

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