Vacation Day 1: Dinner with Paul
Aug. 10th, 2011 09:27 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
I've just had one of the most depressing and terrifying steak dinners in my entire life. And I learned that my mother lives in hell.
After we woke up, we all went over to my mother's boyfriend's condominium. It's a beautiful place, centerpiece apartment on the ninteenth floor of a gorgeous high-security apartment in the heart of downtown Fort Lauderdale's moneied district, with an ubstructed south-easterly view of the Atlantic Ocean, including the Everglades Port Authority, and across the street from a major yachting canal.
"Oh, you're L's son!" he said as I walked in the door. "You have two beautiful daughters! Such beautiful dimples on both of them." He was gregarious in a high-speed way, but it was, to me at least, a familiar high-speed way. I grew up around Paul , and men like him. They're very geeky about what they do, be it medicine or law, which are the only real professions, according to all their mothers, and mine too-- although engineer and filmmaker are acceptable too "as long as you're happy." This is code for "have enough money to retire someday."
Three minutes later, "You have beautiful daughters, such lovely dimples!"
And three minutes later, "You have such beautiful daughters, such lovely dimples."
Paul, it turns out, has middle-stage Alzheimers. We had been warned about this, so it wasn't a surprise. I just wasn't told how exhausting it could be. Every conversation has to be worded as if you're interested. If Paul starts to think you're ignoring him, or acting as if you've heard it all before, he starts to notice something is wrong, but he doesn't know what, and he gets anxious. Anxiety meds help, and there are drugs that slow the progression of the disease, but I've never met an Alzheimer's patient in his condition before. I didn't know what it was like.
Paul has no memory buffer. He can't remember anything more than a few minutes prior. It never goes into long-term memory; that channel has long since been destroyed. He also can't plan; whatever the cutoff for his memory was, he wasn't in a planning mode when it happened, so he has no capacity to form goals beyond "I'm hungry" and "I need to use the bathroom," and "Oh, there are people here. I should talk to them."
And Paul can talk. At one point, I engaged him in a lengthy conversation about his career. He'd had one hell of a career. He was an entertainment lawyer representing actors and other stars, and his career was bookended by Tommy Dorsey and Rocky Marciano at one end, and Burt Reynolds and Dustin Hoffman at the other. Apparently, stars hire lawyers to look after their needs during filming, and Paul was Reynold's acting attorney during the filming of Smokey and the Bandit. His walls were covered with photos of him and stars from the 1950s through the 1970s. It was amazing.
We sat down. The television absorbed his attention. Three minutes later, I could have done it all again, and Paul would have had exactly the same energy level as before.
It was scary. There's a vast repository of human experience and knowledge in that man. From the day before the disease took hold, all the way to the start of his education, Paul can remember everything, if you know what to ask for. But from that day after... nothing. And for every day into the future, for every human hope and precious striving... nothing. There's a brilliant man there, trapped in time. When I wrote A Place In History, about a condemned criminal with artificially induced Alzheimers on a 24-hour cycle, I thought I was being cute. No, really, that is a living hell.
I made dinner. Mom asked me to. It was pretty easy; she'd bought some chicken pieces, so I doused them in good salt, good olive oil, a handful of dipping spices I'd found in a cabinet (no, really, they were garlic and pepper based, and they worked out fabulously), and cut in some onions and garlic and covered the dish in foil. I steamed broccoli and carrots with more oil and garlic and a little red pepper. We also seared some very thick steak slabs for Paul and myself. It was amazing stuff. Paul even said so. "Your son can cook!" he said to Mom, at least five times.
It turns out Paul and Mom were dating when the disease hit, so he thinks they're still dating. But no, she's been employed by his family to be his watcher now. It's exhausting work. He loves television, which must be a blessing to Mom. Paul is one illness away from serious problems: if he develops an illness that requires more than mere daily medication, if he has to do self-maintenance, he can't. He cannot learn. At all. She does all the learning, all the anticipating, all the planning, for him five days a week, and two members of the family take over the other two days.
We said our good-byes and went back to the hotel, only to discover that the "free wi-fi" in at the Fort Lauderdale Hyatt was worthless, with absolutely no bandwidth to speak off; that there were Caribbean Crazy Ants infesting the walls near the sink, and that something upstairs was making a persistent low rhythmic thrum-thrum-thruming through the floor. But we had no food so the ants weren't that much of a problem, and we were all to jetlagged and exhausted to care much anyway.
Omaha made the comment that, when I come to Florida my accent comes out, my speech patterns speed up appreciably, and I speak in a kind of rapid-fire shorthand that she can barely follow. "You were doing it with Paul. It must be a Jewish thing. It's not a Florida thing, nobody on the west coast [of Florida - elf] talks that way." I had to agree; I did see the speech pattern she was describing, and it did only emerge around my father's family and friends, which were mostly, you know, lawyers and doctors whose names end in "zelle," "stein," and "berg."
After we woke up, we all went over to my mother's boyfriend's condominium. It's a beautiful place, centerpiece apartment on the ninteenth floor of a gorgeous high-security apartment in the heart of downtown Fort Lauderdale's moneied district, with an ubstructed south-easterly view of the Atlantic Ocean, including the Everglades Port Authority, and across the street from a major yachting canal.
"Oh, you're L's son!" he said as I walked in the door. "You have two beautiful daughters! Such beautiful dimples on both of them." He was gregarious in a high-speed way, but it was, to me at least, a familiar high-speed way. I grew up around Paul , and men like him. They're very geeky about what they do, be it medicine or law, which are the only real professions, according to all their mothers, and mine too-- although engineer and filmmaker are acceptable too "as long as you're happy." This is code for "have enough money to retire someday."
Three minutes later, "You have beautiful daughters, such lovely dimples!"
And three minutes later, "You have such beautiful daughters, such lovely dimples."
Paul, it turns out, has middle-stage Alzheimers. We had been warned about this, so it wasn't a surprise. I just wasn't told how exhausting it could be. Every conversation has to be worded as if you're interested. If Paul starts to think you're ignoring him, or acting as if you've heard it all before, he starts to notice something is wrong, but he doesn't know what, and he gets anxious. Anxiety meds help, and there are drugs that slow the progression of the disease, but I've never met an Alzheimer's patient in his condition before. I didn't know what it was like.
Paul has no memory buffer. He can't remember anything more than a few minutes prior. It never goes into long-term memory; that channel has long since been destroyed. He also can't plan; whatever the cutoff for his memory was, he wasn't in a planning mode when it happened, so he has no capacity to form goals beyond "I'm hungry" and "I need to use the bathroom," and "Oh, there are people here. I should talk to them."
And Paul can talk. At one point, I engaged him in a lengthy conversation about his career. He'd had one hell of a career. He was an entertainment lawyer representing actors and other stars, and his career was bookended by Tommy Dorsey and Rocky Marciano at one end, and Burt Reynolds and Dustin Hoffman at the other. Apparently, stars hire lawyers to look after their needs during filming, and Paul was Reynold's acting attorney during the filming of Smokey and the Bandit. His walls were covered with photos of him and stars from the 1950s through the 1970s. It was amazing.
We sat down. The television absorbed his attention. Three minutes later, I could have done it all again, and Paul would have had exactly the same energy level as before.
It was scary. There's a vast repository of human experience and knowledge in that man. From the day before the disease took hold, all the way to the start of his education, Paul can remember everything, if you know what to ask for. But from that day after... nothing. And for every day into the future, for every human hope and precious striving... nothing. There's a brilliant man there, trapped in time. When I wrote A Place In History, about a condemned criminal with artificially induced Alzheimers on a 24-hour cycle, I thought I was being cute. No, really, that is a living hell.
I made dinner. Mom asked me to. It was pretty easy; she'd bought some chicken pieces, so I doused them in good salt, good olive oil, a handful of dipping spices I'd found in a cabinet (no, really, they were garlic and pepper based, and they worked out fabulously), and cut in some onions and garlic and covered the dish in foil. I steamed broccoli and carrots with more oil and garlic and a little red pepper. We also seared some very thick steak slabs for Paul and myself. It was amazing stuff. Paul even said so. "Your son can cook!" he said to Mom, at least five times.
It turns out Paul and Mom were dating when the disease hit, so he thinks they're still dating. But no, she's been employed by his family to be his watcher now. It's exhausting work. He loves television, which must be a blessing to Mom. Paul is one illness away from serious problems: if he develops an illness that requires more than mere daily medication, if he has to do self-maintenance, he can't. He cannot learn. At all. She does all the learning, all the anticipating, all the planning, for him five days a week, and two members of the family take over the other two days.
We said our good-byes and went back to the hotel, only to discover that the "free wi-fi" in at the Fort Lauderdale Hyatt was worthless, with absolutely no bandwidth to speak off; that there were Caribbean Crazy Ants infesting the walls near the sink, and that something upstairs was making a persistent low rhythmic thrum-thrum-thruming through the floor. But we had no food so the ants weren't that much of a problem, and we were all to jetlagged and exhausted to care much anyway.
Omaha made the comment that, when I come to Florida my accent comes out, my speech patterns speed up appreciably, and I speak in a kind of rapid-fire shorthand that she can barely follow. "You were doing it with Paul. It must be a Jewish thing. It's not a Florida thing, nobody on the west coast [of Florida - elf] talks that way." I had to agree; I did see the speech pattern she was describing, and it did only emerge around my father's family and friends, which were mostly, you know, lawyers and doctors whose names end in "zelle," "stein," and "berg."
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Date: 2011-08-11 04:39 am (UTC)no subject
Date: 2011-08-11 04:44 am (UTC)